Sunday, June 28, 2009

Chapter One: The Preparations

We've been camping before. We camped growing up, went camping on our honeymoon, and have spent the past 11 years of marriage camping every summer. Pregnancy, small babies, heat, rain, and snow—nothing has kept us away.

We always kick-off the summer with our anniversary camping trip. This year was no different, and we made plans to camp this past weekend not far from where we got married up the Poudre canyon.

With both of us working, and Matt not getting off until late in the afternoon the day we were to leave—I knew I’d have to start preparing and packing early in the week. I spent Thursday running around gathering items, replacing missing or broken items, and making sure we had everything we needed. It was hot, and the kids were tired of being lugged in and out of the car. I got a lot done though, and I was feeling tired, yet proud. Much was already packed, and I had made no less than 5 lists to keep us organized.

The next day I had to work, and somehow managed to get up & ready early only to realize I arrived at work without the power cord for my laptop, and oh—I was supposed to be at a meeting on the north side of town. Whoops. I headed to the meeting. It was short, and allowed me the opportunity to go to the grocery store for the last minute items we needed for the trip.

I came home to work the rest of the morning, but not long after I came home I realized Owen was short on his CF enzymes. We didn’t have enough to make it through the weekend. Great. I frantically made several phone calls trying to get Owen’s new prescription filled locally (it’s not something most pharmacies carry). The only local pharmacist that had it in stock didn’t have enough to fill the prescription. I said that was fine—truly, I just needed twenty to make it. They said they had about 600 of the 800 and I could pick it up in an hour—at 12:15 p.m. Great, I said, I’ll be there. I reassessed my plans for the day, fed the kids lunch, loaded them in the car, and headed to Walgreens. Our fantastic one-way system in Loveland bypasses the pharmacy. I was cut-off twice in the process and ended up going the wrong way, unable to turn around because of construction. Traffic was at a stand still, and yep, it’s hot. Owen, our notorious back-seat driver continues to give me directions.

“GO, mom, GO!”

“I can’t Owen. The cars are stopped.” The cars move an inch and stop.

“Go, mom, GO!”

“Seriously, Owen, when the cars move I will go. Please stop yelling at mom.” Seconds pass.

“Go, mom, GO!”

“Owen, it’s time to not talk anymore while mommy is driving.”

I finally get to the pharmacy at 12:45 p.m. We walk in, and get in line. The “uber” friendly lady behind the counter takes my name, and then starts searching every counter, basket, nook, and cranny for our prescription. Owen and Eden are sitting as patiently as toddlers can in the waiting area chairs. Eden is making sure to say “HI” at least 3 times to every person that comes within shouting distance.

The oh-so-sweet lady (please understand I’m being excessively sarcastic about this woman’s attitude) says that it was a partial-fill and it will take a few more minutes.

Uh, didn’t we know that over an hour ago—I thought to myself, but patiently sat down with my kids. More than 30 minutes pass, and my kids are now having “races” down the Walgreens aisles.

I march back up to the counter. The fantastic lady says to me “Are you still here?”

WHAT THE CRAP! It’s a big window lady—you can SEE me and my kids trying to not tear apart the store—you can HEAR them talking to EVERYONE. WHY THE CRAP WOULD WE BE HANGING OUT IF WE HAD WHAT WE NEEDED?

“Yeah, we’re still here.” I say. Breathe, Tamara, breathe. Eden is now sitting on the counter, and Owen is touching anything he can get his hands on, but the lovely woman goes about her business, assisting the drive-thru and answering the phone. I stare in wonder at her and the pharmacists who don’t even seem to see me standing there with two kids who are in desperate need of nap time.

“Excuse me,” I say to the—I’m assuming—pharmacist. “Can you tell me how much longer it’s going to be? We’re trying to leave town, and these kiddos need to take a nap.”

“What’s your name?”

“Cramer. Owen Cramer. With a C.”

“Oh, yeah, that’s a partial fill.” BREATHE IN. BREATHE OUT.

“Yes, we knew that over two hours ago when I called it in. I was told you would have it ready at 12:15 p.m. I’ve been waiting patiently. This is becoming a bit ridiculous.” He speaks to another pharmacist and they start looking on the shelves. He turns to me and tries to explain to me their billing procedures and why this is apparently so complicated. I nod my head, but he can see that I’m beyond perturbed. He gives me a bottle, and says “no charge.” HA—what he really means is that my insurance covers it all—I know that for a FACT.

What’s truly sad is that this is the 2nd time this pharmacy has done a partial-fill for us. They never have enough on hand to do the full.

When we made it home I realized I had forgotten to eat, and it was nearly 2 p.m. I tossed the kiddos in the tub, and grabbed a sandwich. When I finally got them down for naps, I seriously tackled packing. Gear, clothes, and food—all organized, most—if not all, packed. I lay down and started to doze. No sooner had I shut my eyes than Eden started crying. It was just 4 p.m.—a bit early, for going down so late, but I quickly became aware of the problem.

“Crap,” I said as I looked down at my now wet chest. In the frenzy of lunch and pharmacy roulette, I had neglected to nurse my baby. She’s hungry; I’m now in need of a dry shirt. I get Eden up, and nurse. We cuddle on the couch. I wasn’t expecting Matt for another hour, so I knew I had some time before I needed to finish packing the cooler. I was wrong.

TO BE CONTINUED

Thursday, June 18, 2009

Download

When I talk out the things going on in my head it helps me get organized. Blogging has also helped. It's definitely time for a download, and I'm not seeking your sympathy on all that's going on in my life. I just need to get it out, randomness and all.

I feel like I'm working more now than when I was employed full-time. I know I am home more, but I feel like my brain is in overload right now.

I manage over 15 schedules for more than 9 people, and I just added an entire church. I do this to myself. Why?

I find myself ever frustrated and torn between my mac and pc. I miss pencil and paper.

My desk is covered in large-size sticky note to do lists.

Tenfold: need to figure out marketing process for customer database, re-write newsletter, and work on networking event calendar. Check status of hot projects.

Nurtured Mother: Need to refine copy in business plan and office policies. Must get a flyer out about childbirth education classes. Pay state annual report fee. Order checks.

School of Music: Schedule meeting for Matt & Josh. Finish summer invoicing, remind Matt to write student summaries, begin planning for Fall. Open new ckg acct--order cks--pay for ad.

Blue Sky: complete calendar for June for next meeting. Contact parks & rec to reserve pavilion. Make salsa and beans for Saturday. Lots going on in my mind about church. Or, should I say churches?

Home: dish, laundry...never. ending. Vaccuum (kid brought in leaves from bushes). Toilets need scrubbing. Spend quality time reviewing budget. Get to bank tomorrow/make deposit! Need groceries. Order checks. Need to file "inbox" on desk. It's overflowing.

Need to schedule family pics.

The "We're Okay" video from Jars of Clay is odd in a Tim Burton kind of way.

Need to convince mom & dad to use moving service--it's going to be cheaper/less stressful. (Are you reading this, momma? [Yes, Gena, it is "momma" not "mama." And yes, I just totally responded to a blog via a blog.])

How is it the dresser become so cluttered, so quickly?

Kids: Owen needs to catch up on school work. Eden needs one-on-one book reading time. Find a wading pool for summer--it's getting hot earlier in the day now.

Me: I really want to read a book. Any book would be fine at this point. Just need time to read. Mind is aching for fresh thought. Need to buy new makeup. Need new ideas for lunch--healthier choices. So tired of pb&j. Need more substance than a salad. Wish I had time to sew.

Looking forward to Matt opening his Father's Day card & gift. The kiddos did a great job decorating the box, and writing their names in the card.

I must find new work pants for Matt.

Monday, June 8, 2009

Stuff Growing In Our Garden

Purple Basil is a nice sweet basil that is wonderful in any Italian sauce as well as fresh in a salad.







Everyone in our family likes Black Beans so we are growing some against the back fence. They will grow into tall vines and hopefully produce lots of wonderful black beans.










This year we decided to experiment a bit with growing some things we had never thought of before. Here is a patch of small green lentil plants.










Our usual two zucchini plants will produce more zucchinis than we can eat this summer. They usually end up shredded in the freezer for winter use.
















This pumpkin is one of many that came up after Tamara put our Halloween pumpkin out in the garden compost last fall. Turns out God's method of reproducing vegetables is amazing--who knew? These seedlings are out growing and look more healthy than any other seedlings in the garden. This fall I think we are just going to bury another pumpkin after the fall cleanup of the garden. So easy and effective.

Wednesday, June 3, 2009

Whoa!

Look at the pics I just posted.

Now, look at the pics of the kids in sidebar--those are from a year ago.

pictures from Sunday--thanks Lisa







Owen's update

Last Wednesday Owen had his annual visit at the Children's Hospital in Denver. We also met with a surgeon to talk about his rectal prolapse.

The surgeon was awesome, and very reassuring. For now, we've decided to continue to monitor him, and use diet and training to control the prolapse. Eventually he will most likely require surgery to tighten things up, but as he has only recently become fully potty trained--we didn't want to set him back with a surgery and hospital stay. The surgery is also pretty basic, and doesn't seem too invasive. That was reassuring.

We met a new nutritionist--and she was GREAT! Many of you know that we've been very disappointed with our past experiences with our nutritionist. This one listened and asked questions about our holistic treatment of Owen with great enthusiasm and encouragement. She also noted (as all of Owen's medical team do) that Owen is growing rapidly--very unusual for his geno-type. She asked us to take part in their genotype study. They want to find out what is so different about Owen that allows him to grow so well, while others with the same genotype fail to thrive.

Owen's lungs are showing very early signs of "cloudiness"--something that is very common for CF kids, though most show it much sooner. This means we must be even more diligent with his respitory therapy, and possibly next year we'll introduce a new drug--pulmozyme. Pulmozyme is an inhaled drug that thins mucus, allowing CF patients to get it out of their lungs easier. It's been very successful, and I've only heard positive information from other parents--so, I'm interested in seeing how it can help Owen.

The most amazing news was finding out that Owen has grown nearly 2 inches and over 2 pounds in less than 5 months. Incredible, and a huge blessing. Though, it's evident he will quickly be as tall, and then taller, than his mom very soon.